Desmoplastic
Small Round Cell
Tumor Charity
Raising funds for research into Desmoplastic Small Round Cell Tumour is essential. With neither pharmaceutical companies, or larger generic cancer charities prioritising funding research working together as the families and friends of those affected by the disease is crucial. We recognise the significant work put into this area by families who have gone before us, but believe that by coming together as one community we can make a bigger difference than we can alone.
With five year survival rates remaining at only 15% it is critical that research into more effective and kinder treatments is at the forefront of Capture’s mission. A mission that we can’t accomplish without your help.
Since November 2024 we have raised over £100,000. The first £90,000 of this will go to producing a systematic review via the CCLG. This will ensure that all of the current worldwide research around Desmoplastic Small Round Cell Tumour is analysed and appraised. No-one will need to look for a needle in a haystack ever again to ensure they understand the research that is already out there. We estimate this work will be complete in January 2026 and will post updates to the site as soon as we have them.
There continue to be a large number of unanswered questions around DSRCT. Questions like when is surgery advisable, when is it best to use radiotherapy, how do we best improve the quality of life for those undergoing palliative care for Desmoplastic Small Round Cell Tumour remain largely unanswerable on a broader scale. There is no effective chemotherapy or radiotherapy treatment available. We need to do better and we need to do it now. Donating today will help us to fund research to give answers to those questions most critical to patients and their families.
If you are currently working on a research project that includes Desmoplastic Small Round Cell Tumour please let us know so that we can add the details of your project to our ongoing projects list. We hope this list will help researchers to collaborate with others looking into similar areas and avoid potential duplication of projects.
We welcome interest from medical professionals and researchers with an interest in Desmoplastic Small Round Cell Tumour who are looking for funding. We are particularly interested in supporting projects that will improve the lives of those living with Desmoplastic Small Round Cell Tumour, or those which could advance treatment for the condition.
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The rarity of Desmoplastic Small Round Cell Tumour means that many of those diagnosed won’t meet others with the same diagnosis in their local hospitals. Whilst some will travel to larger treatment centres we believe strongly that this is a diagnosis that no-one should face alone.